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CESJ

CENTER FOR ETHICS IN SCIENCE AND SCIENCE JOURNALISM - CENTRO PER L'ETICA NELLA SCIENZA E NEL GIORNALISMO SCIENTIFICO
Country: Italy
2 Projects, page 1 of 1
  • Funder: European Commission Project Code: 101214125
    Overall Budget: 12,372,100 EURFunder Contribution: 11,999,200 EUR

    This proposal for a European Cancer Patient Digital Centre (ECPDC) Information Portal, EU-CIP, addresses the information needs of cancer patients, survivors, relatives, and caregivers. EU-CIP aims to create a patient-centric cancer information portal that improves health literacy, empowers patients, and reduces inequalities in access to cancer care information across Europe. The EU-CIP primary goal is to improve quality of life and enhance cancer patient care by improving access to general and personalized knowledge, delivering comprehensive information on cancer prevention, early detection, diagnosis, and treatment options including risks, side effects and late effects as well as information on rehabilitation and management of recurrence and palliative care. EU-CIP will prioritise high-incidence cancers, those with poor prognosis, and paediatric cancers. A Common Library of Contents available to all Member States will be created and EU-CIP nodes will be deployed in 10 Member States. The Library of Contents will use information from evidence-based sources such as the Knowledge Centre on Cancer and the European Cancer Information Service, existing Cancer Information Portals, and European guidelines. A governance framework for scalable content creation and review processes supported by AI tooling will be established. The consortium partners, including several patient organisations, will ensure that the patients’ view is reflected in the content review and technology usability aspects. The EU-CIP Central and local nodes will be built in a modular fashion to allow integration with existing electronic health infrastructures. To align with the EU Cancer Mission goal to improve lives through prevention, EU-CIP will raise awareness about the Mission and Europe’s Beating Cancer Plan. Alignment with the Mission’s overall plans will be realized through collaboration with the EU funded projects of the related 01-01/01-02 calls.

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  • Funder: European Commission Project Code: 101121863
    Overall Budget: 1,499,670 EURFunder Contribution: 1,499,670 EUR

    The overall objective of FRONTIERS is to establish a program supporting science journalists residencies in European research institutions through a financial support to third parties mechanism. The program aims to and contribute to tackling the challenges of science journalism, specifically in the highly challenging area of Frontier research, as well as increasing the opportunities of interaction between research institutions and science journalists. The residency program will be established based on the principles of journalistic independence and the need for coverage of frontier (as oppose to other types of) research. To ensure a smooth and successful operation, we will develop a coordination and support office (CSO) that will oversee the development and implementation of the residency program and the ongoing management and monitoring. The CSO will also provide support and complementary services including a general and frontier science helpdesk for journalists, researchers and staff from hosting research institutions, matchmaking services to help journalists find hosting institutions. Our project activities will be supervised and accompanied by a strong advisory board consist of actors from the areas of science and science journalism, ensuring the independency and credibility of the program. Resident journalists and researchers and research staff participating in the program will also benefit from training activities and content contributing to the creation of meaningful journalists-researcher collaboration and the generation of high-quality and credible science journalism products. During the project, we will also benchmark the FRONTIERS residency program to other available programs offering fellowships to science journalists, and implement best practices to ensure the quality of the program. Finally, we will explore paths towards sustainability the residencies through additional funding channels.

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