554 Data sources
- SG
- EU
- GE
- SG
- EU
- GE
- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, EUREF, IAG Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,EUREF,IAG
re3data: r3d100011724
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union, Germany, Netherlands, United States Compatibility:Not yet registeredPartners:IAS, European Space Agency, ISO Data Centre, MPE, MPIN, SRON +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsIAS,European Space Agency, ISO Data Centre,MPE,MPIN,SRON,IPAC
re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Switzerland, European Union, Norway Compatibility:Not yet registeredPartners:UNIL, Consortium of European Social Science Data Archives, CESSDA, Swiss Academy of Pharmaceutical Sciences, SNSF +1 partners Humanities and Social Sciences, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious Studies, Social and Cultural Anthropology and Ethnology/FolkloreUNIL,Consortium of European Social Science Data Archives,CESSDA,Swiss Academy of Pharmaceutical Sciences,SNSF,FORS
re3data: r3d100010368
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, United States, European Union, Norway Compatibility:Not yet registeredPartners:BMBF, OSF, European Union, Horizon 2020, Project Power-grid frequency database, Helmholtz Association of German Research Centres +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsBMBF,OSF,European Union, Horizon 2020,Project Power-grid frequency database,Helmholtz Association of German Research Centres,Helmholtz Uncertainty Quantification project,University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,DFG
re3data: r3d100013364
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re3data: r3d100013058
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re3data: r3d100011057
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re3data: r3d100011394
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All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.da9307&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.da9307&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:Not yet registeredPartners:International Aid Transparency Governing board, International Aid Transparency Initiative Steering Committee Humanities and Social Sciences, Social Sciences, Political ScienceInternational Aid Transparency Governing board,International Aid Transparency Initiative Steering Committee
re3data: r3d100011625
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re3data: r3d100012014
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554 Data sources
- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, EUREF, IAG Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,EUREF,IAG
re3data: r3d100011724
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union, Germany, Netherlands, United States Compatibility:Not yet registeredPartners:IAS, European Space Agency, ISO Data Centre, MPE, MPIN, SRON +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsIAS,European Space Agency, ISO Data Centre,MPE,MPIN,SRON,IPAC
re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Switzerland, European Union, Norway Compatibility:Not yet registeredPartners:UNIL, Consortium of European Social Science Data Archives, CESSDA, Swiss Academy of Pharmaceutical Sciences, SNSF +1 partners Humanities and Social Sciences, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious Studies, Social and Cultural Anthropology and Ethnology/FolkloreUNIL,Consortium of European Social Science Data Archives,CESSDA,Swiss Academy of Pharmaceutical Sciences,SNSF,FORS
re3data: r3d100010368
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, United States, European Union, Norway Compatibility:Not yet registeredPartners:BMBF, OSF, European Union, Horizon 2020, Project Power-grid frequency database, Helmholtz Association of German Research Centres +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsBMBF,OSF,European Union, Horizon 2020,Project Power-grid frequency database,Helmholtz Association of German Research Centres,Helmholtz Uncertainty Quantification project,University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,DFG
re3data: r3d100013364
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Greece, United Kingdom, European Union Compatibility:Not yet registeredPartners:SBOING.net, Coventry University, European Commission, HORIZON 2020, TInnGO Humanities and Social Sciences, Education Sciences, Social and Behavioural SciencesSBOING.net,Coventry University,European Commission, HORIZON 2020,TInnGO
re3data: r3d100013058
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re3data: r3d100011057
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re3data: r3d100011394
B2SHARE is a user-friendly, reliable and trustworthy way for researchers, scientific communities and citizen scientists to store and share small-scale research data from diverse contexts.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.da9307&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.da9307&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:Not yet registeredPartners:International Aid Transparency Governing board, International Aid Transparency Initiative Steering Committee Humanities and Social Sciences, Social Sciences, Political ScienceInternational Aid Transparency Governing board,International Aid Transparency Initiative Steering Committee
re3data: r3d100011625
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re3data: r3d100012014
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