- NL
- NO
- SE
- Thematic: No
- NL
- NO
- SE
- Thematic: No
- Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:VU, Universiteit Utrecht, Universiteitsbibliotheek, Maastricht University, University Library, DANS, Leiden University +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesVU,Universiteit Utrecht, Universiteitsbibliotheek,Maastricht University, University Library,DANS,Leiden University,4TU.Federation,LIS,Utrecht University,NIOO,Dataverse,University of Groningen,Trimbos Institute
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Norway Compatibility:OpenAIRE 3.0 (OA, funding)Partners:AHO Multidisciplinary, ArchitectureAHOOAI-PMH URL: https://aho.brage.unit.no/aho-oai/openaire
This site provides access to the research output of the institution. The interface is available in Norwegian and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden Compatibility:Not yet registeredPartners:Swedish National Data Service Subject AgnosticSwedish National Data Service
Researchdata.se is a national web portal where you can find, share, and reuse research data from a wide range of research fields. You can also find helpful advice and recommendations on managing research data. Several leading research infrastructures are behind Researchdata.se, which is an important step towards the goal of open access to publicly funded research data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Norway Compatibility:OpenAIRE 3.0 (OA, funding)Partners:NINANINAOAI-PMH URL: https://brage.nina.no/nina-oai/openaire
This site provides access to the research outputs of the Norsk institutt for naturforskning (NINA) (Norwegian Institute for Nature Research). Users may set up RSS feeds to be alerted to new content. The interface is available in Norwegian and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:DANS, VSNU Subject AgnosticDANS,VSNU
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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- Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:VU, Universiteit Utrecht, Universiteitsbibliotheek, Maastricht University, University Library, DANS, Leiden University +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesVU,Universiteit Utrecht, Universiteitsbibliotheek,Maastricht University, University Library,DANS,Leiden University,4TU.Federation,LIS,Utrecht University,NIOO,Dataverse,University of Groningen,Trimbos Institute
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Norway Compatibility:OpenAIRE 3.0 (OA, funding)Partners:AHO Multidisciplinary, ArchitectureAHOOAI-PMH URL: https://aho.brage.unit.no/aho-oai/openaire
This site provides access to the research output of the institution. The interface is available in Norwegian and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden Compatibility:Not yet registeredPartners:Swedish National Data Service Subject AgnosticSwedish National Data Service
Researchdata.se is a national web portal where you can find, share, and reuse research data from a wide range of research fields. You can also find helpful advice and recommendations on managing research data. Several leading research infrastructures are behind Researchdata.se, which is an important step towards the goal of open access to publicly funded research data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Norway Compatibility:OpenAIRE 3.0 (OA, funding)Partners:NINANINAOAI-PMH URL: https://brage.nina.no/nina-oai/openaire
This site provides access to the research outputs of the Norsk institutt for naturforskning (NINA) (Norwegian Institute for Nature Research). Users may set up RSS feeds to be alerted to new content. The interface is available in Norwegian and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:DANS, VSNU Subject AgnosticDANS,VSNU
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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