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- Institutional Repository Czech Republic Compatibility:OpenAIRE 3.0 (OA, funding)Partners:Charles University Language and LiteratureCharles UniversityOAI-PMH URL: http://lindat.mff.cuni.cz/biblio/oai
This site provides access to the research output of the institution. Many items are not available as full-text.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:Not yet registeredPartners:Powiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoPowiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic Compatibility:Not yet registeredPartners:MU Life Science, channel, StructureMU
ChannelsDB is a comprehensive and regularly updated resource of channels, pores and tunnels found in biomacromolecules deposited in the Protein Data Bank. The database contains information about channel positions, geometry and physicochemical properties.
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For further information contact us at helpdesk@openaire.eu - Data Repository Romania Compatibility:Not yet registeredPartners:National Institute for Research and Development in Optoelectronics INOE 2000, ICAS, INOE 2000 Humanities and Social Sciences, Humanities, Natural SciencesNational Institute for Research and Development in Optoelectronics INOE 2000,ICAS,INOE 2000
re3data: r3d100013981
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:Not yet registeredPartners:Koszalin University of Technology Humanities and Social Sciences, Social Sciences, EconomicsKoszalin University of Technology
re3data: r3d100013789
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re3data: r3d100014101
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- Institutional Repository Czech Republic Compatibility:OpenAIRE 3.0 (OA, funding)Partners:Charles University Language and LiteratureCharles UniversityOAI-PMH URL: http://lindat.mff.cuni.cz/biblio/oai
This site provides access to the research output of the institution. Many items are not available as full-text.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic Compatibility:Not yet registeredPartners:MU Life Science, channel, StructureMU
ChannelsDB is a comprehensive and regularly updated resource of channels, pores and tunnels found in biomacromolecules deposited in the Protein Data Bank. The database contains information about channel positions, geometry and physicochemical properties.
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For further information contact us at helpdesk@openaire.eu - Data Repository Romania Compatibility:Not yet registeredPartners:National Institute for Research and Development in Optoelectronics INOE 2000, ICAS, INOE 2000 Humanities and Social Sciences, Humanities, Natural SciencesNational Institute for Research and Development in Optoelectronics INOE 2000,ICAS,INOE 2000
re3data: r3d100013981
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