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  • The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.

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  • The WHO has created a global clinical platform of patient-level anonymized clinical data. The Platform is a secure, limited-access, password-protected platform hosted on REDCap.

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  • The PPEPDR contains information regarding the availability and security of sustainable supply of oil and gas for economic development and strategic requirements of Pakistan and to coordinate development of natural resources of energy and minerals.

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  • The OpenNeuro project (formerly known as the OpenfMRI project) was established in 2010 to provide a resource for researchers interested in making their neuroimaging data openly available to the research community. It is managed by Russ Poldrack and Chris Gorgolewski of the Center for Reproducible Neuroscience at Stanford University. The project has been developed with funding from the National Science Foundation, National Institute of Drug Abuse, and the Laura and John Arnold Foundation.

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  • B2SHARE is a user-friendly, reliable and trustworthy way for researchers, scientific communities and citizen scientists to store and share small-scale research data from diverse contexts.

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  • ICOS Carbon Portal offers free access to high-quality and standardised greenhouse gas data, as well as to scientific and educational products and services. The Carbon Portal is a ‘one-stop shop’ for all ICOS data products. Carbon Portal manages data security, enforcement of the ICOS data policy, with user-friendly (and machine-friendly) internet- and other computer-network based interfaces. It organises long-term archiving of ICOS data products to guarantee their safe storage, future access and easy re-use. FAIR data handling is the key for the high ICOS data quality. ICOS has created a transparent, documented and reproducible process throughout the data life cycle: from the measurements at the station via the Thematic Centres and the ICOS Carbon Portal to the user. All data distributed from the stations and going through the Central Facilities, are distributed in Carbon Portal. We are following the international developments in FAIR data management to build interoperable systems and make ICOS data free available in a transparent way. The Carbon Portal is hosted by the Lund University in Sweden and Wageningen University in the Netherlands.

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  • The Coherent X-ray Imaging Data Bank (CXIDB) offers scientists from all over the world a unique opportunity to access data from Coherent X-ray Imaging (CXI) experiments. It arose from the need to share the terabytes of data generated from X-ray free-electron laser experiments although it caters to all light sources. Accessibility is crucial not only to make efficient use of experimental facilities, but also to improve the reproducibility of results and enable new research based on previous experiments.

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  • GnpIS is a multispecies integrative information system dedicated to plant and fungi pests. It bridges genetic and genomic data, allowing researchers access to both genetic information (e.g. genetic maps, quantitative trait loci, association genetics, markers, polymorphisms, germplasms, phenotypes and genotypes) and genomic data (e.g. genomic sequences, physical maps, genome annotation and expression data) for species of agronomical interest. GnpIS is used by both large international projects and plant science departments at the French National Institute for Agricultural Research. It is regularly improved and released several times per year. GnpIS is accessible through a web portal and allows to browse different types of data either independently through dedicated interfaces or simultaneously using a quick search ('google like search') or advanced search (Biomart, Galaxy, Intermine) tools.

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502 Data sources
  • The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.

    more_vert
  • The WHO has created a global clinical platform of patient-level anonymized clinical data. The Platform is a secure, limited-access, password-protected platform hosted on REDCap.

    more_vert
  • The PPEPDR contains information regarding the availability and security of sustainable supply of oil and gas for economic development and strategic requirements of Pakistan and to coordinate development of natural resources of energy and minerals.

    more_vert
  • more_vert
  • more_vert
  • The OpenNeuro project (formerly known as the OpenfMRI project) was established in 2010 to provide a resource for researchers interested in making their neuroimaging data openly available to the research community. It is managed by Russ Poldrack and Chris Gorgolewski of the Center for Reproducible Neuroscience at Stanford University. The project has been developed with funding from the National Science Foundation, National Institute of Drug Abuse, and the Laura and John Arnold Foundation.

    more_vert
  • B2SHARE is a user-friendly, reliable and trustworthy way for researchers, scientific communities and citizen scientists to store and share small-scale research data from diverse contexts.

    more_vert
  • ICOS Carbon Portal offers free access to high-quality and standardised greenhouse gas data, as well as to scientific and educational products and services. The Carbon Portal is a ‘one-stop shop’ for all ICOS data products. Carbon Portal manages data security, enforcement of the ICOS data policy, with user-friendly (and machine-friendly) internet- and other computer-network based interfaces. It organises long-term archiving of ICOS data products to guarantee their safe storage, future access and easy re-use. FAIR data handling is the key for the high ICOS data quality. ICOS has created a transparent, documented and reproducible process throughout the data life cycle: from the measurements at the station via the Thematic Centres and the ICOS Carbon Portal to the user. All data distributed from the stations and going through the Central Facilities, are distributed in Carbon Portal. We are following the international developments in FAIR data management to build interoperable systems and make ICOS data free available in a transparent way. The Carbon Portal is hosted by the Lund University in Sweden and Wageningen University in the Netherlands.

    more_vert
  • The Coherent X-ray Imaging Data Bank (CXIDB) offers scientists from all over the world a unique opportunity to access data from Coherent X-ray Imaging (CXI) experiments. It arose from the need to share the terabytes of data generated from X-ray free-electron laser experiments although it caters to all light sources. Accessibility is crucial not only to make efficient use of experimental facilities, but also to improve the reproducibility of results and enable new research based on previous experiments.

    more_vert
  • GnpIS is a multispecies integrative information system dedicated to plant and fungi pests. It bridges genetic and genomic data, allowing researchers access to both genetic information (e.g. genetic maps, quantitative trait loci, association genetics, markers, polymorphisms, germplasms, phenotypes and genotypes) and genomic data (e.g. genomic sequences, physical maps, genome annotation and expression data) for species of agronomical interest. GnpIS is used by both large international projects and plant science departments at the French National Institute for Agricultural Research. It is regularly improved and released several times per year. GnpIS is accessible through a web portal and allows to browse different types of data either independently through dedicated interfaces or simultaneously using a quick search ('google like search') or advanced search (Biomart, Galaxy, Intermine) tools.

    more_vert
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