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- Data Repository Netherlands, France Compatibility:Not yet registeredPartners:CLARIN, SGPI, CNRS, CGI, ATILF +2 partners Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,SGPI,CNRS,CGI,ATILF,HN,Université de Lorraine
re3data: r3d100011329
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NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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re3data: r3d100012445
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re3data: r3d100014252
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, United States Compatibility:Not yet registeredPartners:Royal Observatory of Belgium, University of Kentucky, Department of Physics and Astronomy Natural Sciences, Optics, Quantum Optics and Physics of Atoms, Molecules and Plasmas, Optics, Quantum Optics, Atoms, Molecules, PlasmasRoyal Observatory of Belgium,University of Kentucky, Department of Physics and Astronomy
re3data: r3d100011444
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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re3data: r3d100014140
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- Data Repository Netherlands, France Compatibility:Not yet registeredPartners:CLARIN, SGPI, CNRS, CGI, ATILF +2 partners Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,SGPI,CNRS,CGI,ATILF,HN,Université de Lorraine
re3data: r3d100011329
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, publicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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re3data: r3d100012445
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re3data: r3d100014252
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, United States Compatibility:Not yet registeredPartners:Royal Observatory of Belgium, University of Kentucky, Department of Physics and Astronomy Natural Sciences, Optics, Quantum Optics and Physics of Atoms, Molecules and Plasmas, Optics, Quantum Optics, Atoms, Molecules, PlasmasRoyal Observatory of Belgium,University of Kentucky, Department of Physics and Astronomy
re3data: r3d100011444
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Belgium Compatibility:Not yet registeredPartners:International Oceanographic Data and Information ExchangeInternational Oceanographic Data and Information ExchangeAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Singapore Compatibility:Not yet registeredPartners:National Institute of Education Humanities and Social Sciences, Life Sciences, MedicineNational Institute of Education
re3data: r3d100014140
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