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- Institutional Repository Austria Compatibility:OpenAIRE 3.0 (OA, funding)Partners:FH Burgenland Ecology and Environment, Social Sciences General, Business and EconomicsFH BurgenlandOAI-PMH URL: https://people.fh-burgenland.at/server/oai/request
This site provides access to the academic output of the University. Not all items are available in full text. The interface is available in German.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:UFASUFASAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, Austria Compatibility:Not yet registeredPartners:CLARIN, ACDH, OAW, Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,ACDH,OAW,Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of GroningenUniversity of GroningenAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:Not yet registeredPartners:Medical University of Vienna Biology and Biochemistry, Chemistry and Chemical Technology, Ecology and EnvironmentMedical University of Vienna
This site provides access to the research output of the institution, The interface is available in French or English.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:OpenAIRE Basic (DRIVER OA)Partners:BOKU MultidisciplinaryBOKUOAI-PMH URL: http://epub.boku.ac.at/oai/
This site provides access to the research output of the institution. The interface is available in German and English.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:Université dAlger 2 abou elkacem SaadallahUniversité dAlger 2 abou elkacem Saadallah
This site provides access to the research outputs of the Université dAlger 2. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of GroningenUniversity of GroningenAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Netherlands Compatibility:Not yet registeredPartners:LG, CLARIN, CLARIN-D, MWK-BW, MWK +1 partners Humanities and Social Sciences, Linguistics, HumanitiesLG,CLARIN,CLARIN-D,MWK-BW,MWK,IDS
re3data: r3d100010264
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010264&type=result"></script>'); --> </script>
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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- Institutional Repository Austria Compatibility:OpenAIRE 3.0 (OA, funding)Partners:FH Burgenland Ecology and Environment, Social Sciences General, Business and EconomicsFH BurgenlandOAI-PMH URL: https://people.fh-burgenland.at/server/oai/request
This site provides access to the academic output of the University. Not all items are available in full text. The interface is available in German.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:UFASUFASAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, Austria Compatibility:Not yet registeredPartners:CLARIN, ACDH, OAW, Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,ACDH,OAW,Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft
re3data: r3d100011333
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:Not yet registeredPartners:Medical University of Vienna Biology and Biochemistry, Chemistry and Chemical Technology, Ecology and EnvironmentMedical University of Vienna
This site provides access to the research output of the institution, The interface is available in French or English.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:OpenAIRE Basic (DRIVER OA)Partners:BOKU MultidisciplinaryBOKUOAI-PMH URL: http://epub.boku.ac.at/oai/
This site provides access to the research output of the institution. The interface is available in German and English.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:Université dAlger 2 abou elkacem SaadallahUniversité dAlger 2 abou elkacem Saadallah
This site provides access to the research outputs of the Université dAlger 2. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Netherlands Compatibility:Not yet registeredPartners:LG, CLARIN, CLARIN-D, MWK-BW, MWK +1 partners Humanities and Social Sciences, Linguistics, HumanitiesLG,CLARIN,CLARIN-D,MWK-BW,MWK,IDS
re3data: r3d100010264
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010264&type=result"></script>'); --> </script>
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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