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- Data Repository France, Portugal Compatibility:Not yet registeredPartners:Institut national de la santé et de la recherche médicale, University of Aveiro, Centre for Environmental and Marine Studies, University of Aveiro, Department of Biology Life Sciences, Basic Biological and Medical Research, General GeneticsInstitut national de la santé et de la recherche médicale,University of Aveiro, Centre for Environmental and Marine Studies,University of Aveiro, Department of Biology
re3data: r3d100011287
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, Pakistan Compatibility:Not yet registeredPartners:NSF, MSU, NMHM, NIH, University of Wisconsin–Oshkosh Life Sciences, Zoology, Biochemistry and Animal PhysiologyNSF,MSU,NMHM,NIH,University of Wisconsin–Oshkosh
re3data: r3d100010615
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic Compatibility:Not yet registeredPartners:MU Life Science, channel, StructureMU
ChannelsDB is a comprehensive and regularly updated resource of channels, pores and tunnels found in biomacromolecules deposited in the Protein Data Bank. The database contains information about channel positions, geometry and physicochemical properties.
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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For further information contact us at helpdesk@openaire.eu - Data Repository Austria, European Union Compatibility:Not yet registeredPartners:OAW, CLARIN K(nowledge)-Centres Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsOAW,CLARIN K(nowledge)-Centres
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For further information contact us at helpdesk@openaire.eu - Thematic Repository France Compatibility:OpenAIRE Basic (DRIVER OA)Partners:INIST-CNRS MultidisciplinaryINIST-CNRSOAI-PMH URL: http://www.opengrey.eu/oai/
This site provides access to Grey Literature from Europe. The interface is available in French and English. This site replaces OpenSIGLE. The content is available in a variety of European languages.
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For further information contact us at helpdesk@openaire.eu - Data Repository Singapore Compatibility:Not yet registeredPartners:National Institute of Education Humanities and Social Sciences, Life Sciences, MedicineNational Institute of Education
re3data: r3d100014140
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, European Union, Netherlands, United States, France Compatibility:Not yet registeredPartners:MPIN, European Space Agency, ISO Data Centre, MPE, SRON, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsMPIN,European Space Agency, ISO Data Centre,MPE,SRON,IPAC,IAS
re3data: r3d100010597
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- Data Repository France, Portugal Compatibility:Not yet registeredPartners:Institut national de la santé et de la recherche médicale, University of Aveiro, Centre for Environmental and Marine Studies, University of Aveiro, Department of Biology Life Sciences, Basic Biological and Medical Research, General GeneticsInstitut national de la santé et de la recherche médicale,University of Aveiro, Centre for Environmental and Marine Studies,University of Aveiro, Department of Biology
re3data: r3d100011287
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, Pakistan Compatibility:Not yet registeredPartners:NSF, MSU, NMHM, NIH, University of Wisconsin–Oshkosh Life Sciences, Zoology, Biochemistry and Animal PhysiologyNSF,MSU,NMHM,NIH,University of Wisconsin–Oshkosh
re3data: r3d100010615
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic Compatibility:Not yet registeredPartners:MU Life Science, channel, StructureMU
ChannelsDB is a comprehensive and regularly updated resource of channels, pores and tunnels found in biomacromolecules deposited in the Protein Data Bank. The database contains information about channel positions, geometry and physicochemical properties.
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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For further information contact us at helpdesk@openaire.eu - Data Repository Austria, European Union Compatibility:Not yet registeredPartners:OAW, CLARIN K(nowledge)-Centres Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsOAW,CLARIN K(nowledge)-Centres
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For further information contact us at helpdesk@openaire.eu - Thematic Repository France Compatibility:OpenAIRE Basic (DRIVER OA)Partners:INIST-CNRS MultidisciplinaryINIST-CNRSOAI-PMH URL: http://www.opengrey.eu/oai/
This site provides access to Grey Literature from Europe. The interface is available in French and English. This site replaces OpenSIGLE. The content is available in a variety of European languages.
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For further information contact us at helpdesk@openaire.eu - Data Repository Singapore Compatibility:Not yet registeredPartners:National Institute of Education Humanities and Social Sciences, Life Sciences, MedicineNational Institute of Education
re3data: r3d100014140
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, European Union, Netherlands, United States, France Compatibility:Not yet registeredPartners:MPIN, European Space Agency, ISO Data Centre, MPE, SRON, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsMPIN,European Space Agency, ISO Data Centre,MPE,SRON,IPAC,IAS
re3data: r3d100010597
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