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- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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QSpace is an online repository of digital content produced and collected by the Queen’s University community. QSpace provides access to peer-reviewed articles, conference papers, technical reports, graduate theses and dissertations and other works produced by Queen’s faculty and students. QSpace is managed by the Library’s Scholarly Publishing service, facilitating seamless access to Queen’s research to the widest possible audience. For more information about QSpace and to contribute your work(s) please contact the Scholarly Publishing Team.
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For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre, PSF, Sitka Foundation Natural Sciences, Atmospheric Science and Oceanography, OceanographyUniversity of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre,PSF,Sitka Foundation
re3data: r3d100014003
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re3data: r3d100012981
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For further information contact us at helpdesk@openaire.eu - Data Repository Singapore Compatibility:Not yet registeredPartners:National Institute of Education Humanities and Social Sciences, Life Sciences, MedicineNational Institute of Education
re3data: r3d100014140
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This site provides access to documents authored by NRC employees. Some items are not available as full text; where available, alternative locations to obtain documents may be provided. The interface is in French and English.
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- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:KMS Of Academy of mathematics and systems sciences, CASKMS Of Academy of mathematics and systems sciences, CASAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:Knowledge Management System of Institute of Deep-sea Science and Engineering,CASKnowledge Management System of Institute of Deep-sea Science and Engineering,CASAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Canada Compatibility:OpenAIRE PubRepos v4.0Partners:Queens University MultidisciplinaryQueens UniversityOAI-PMH URL: https://qspace.library.queensu.ca/oai/openaire4
QSpace is an online repository of digital content produced and collected by the Queen’s University community. QSpace provides access to peer-reviewed articles, conference papers, technical reports, graduate theses and dissertations and other works produced by Queen’s faculty and students. QSpace is managed by the Library’s Scholarly Publishing service, facilitating seamless access to Queen’s research to the widest possible audience. For more information about QSpace and to contribute your work(s) please contact the Scholarly Publishing Team.
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This site provides access to the output of the institution. The interface is available in Chinese and English. Some items are not available as full-text.
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For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre, PSF, Sitka Foundation Natural Sciences, Atmospheric Science and Oceanography, OceanographyUniversity of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre,PSF,Sitka Foundation
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This site provides access to documents authored by NRC employees. Some items are not available as full text; where available, alternative locations to obtain documents may be provided. The interface is in French and English.
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