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re3data: r3d100012445
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland, Belgium Compatibility:Not yet registeredPartners:Ministry of Maritime Economy and Inland Navigation, EU, Maritime Office in Gdynia, Maritime Office in Szczecin Humanities and Social Sciences, Natural Sciences, Atmospheric Science and OceanographyMinistry of Maritime Economy and Inland Navigation,EU,Maritime Office in Gdynia,Maritime Office in Szczecin
re3data: r3d100014252
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, United States Compatibility:Not yet registeredPartners:Royal Observatory of Belgium, University of Kentucky, Department of Physics and Astronomy Natural Sciences, Optics, Quantum Optics and Physics of Atoms, Molecules and Plasmas, Optics, Quantum Optics, Atoms, Molecules, PlasmasRoyal Observatory of Belgium,University of Kentucky, Department of Physics and Astronomy
re3data: r3d100011444
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Belgium Compatibility:OpenAIRE 2.0+ (DRIVER OA, EC funding)Partners:UCL MultidisciplinaryUCLOAI-PMH URL: http://dial.uclouvain.be/oai2/
This site provides access to the research output of the institution. Some items are not available as full text. The interface in French and English
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, Germany, Spain Compatibility:Not yet registeredPartners:PRACE, AstroGrid-D, AIP, Multimessenger Approach for Dark Matter Detection, GAVO Natural Sciences, Astrophysics and Astronomy, PhysicsPRACE,AstroGrid-D,AIP,Multimessenger Approach for Dark Matter Detection,GAVO
re3data: r3d100011040
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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- Data Repository Netherlands Compatibility:Not yet registeredPartners:ROI Life Sciences, Medicine, MedicineROI
re3data: r3d100012445
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland, Belgium Compatibility:Not yet registeredPartners:Ministry of Maritime Economy and Inland Navigation, EU, Maritime Office in Gdynia, Maritime Office in Szczecin Humanities and Social Sciences, Natural Sciences, Atmospheric Science and OceanographyMinistry of Maritime Economy and Inland Navigation,EU,Maritime Office in Gdynia,Maritime Office in Szczecin
re3data: r3d100014252
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, United States Compatibility:Not yet registeredPartners:Royal Observatory of Belgium, University of Kentucky, Department of Physics and Astronomy Natural Sciences, Optics, Quantum Optics and Physics of Atoms, Molecules and Plasmas, Optics, Quantum Optics, Atoms, Molecules, PlasmasRoyal Observatory of Belgium,University of Kentucky, Department of Physics and Astronomy
re3data: r3d100011444
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Belgium Compatibility:Not yet registeredPartners:International Oceanographic Data and Information ExchangeInternational Oceanographic Data and Information ExchangeAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Belgium Compatibility:OpenAIRE 2.0+ (DRIVER OA, EC funding)Partners:UCL MultidisciplinaryUCLOAI-PMH URL: http://dial.uclouvain.be/oai2/
This site provides access to the research output of the institution. Some items are not available as full text. The interface in French and English
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, Germany, Spain Compatibility:Not yet registeredPartners:PRACE, AstroGrid-D, AIP, Multimessenger Approach for Dark Matter Detection, GAVO Natural Sciences, Astrophysics and Astronomy, PhysicsPRACE,AstroGrid-D,AIP,Multimessenger Approach for Dark Matter Detection,GAVO
re3data: r3d100011040
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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