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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:Université Côte d'Azur Humanities and Social Sciences, Life Sciences, Natural SciencesUniversité Côte d'Azur
re3data: r3d100014299
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Austria Compatibility:Not yet registeredPartners:CLARIN K(nowledge)-Centres, OAW Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsCLARIN K(nowledge)-Centres,OAW
re3data: r3d100012527
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For further information contact us at helpdesk@openaire.eu - Data Repository Portugal, France Compatibility:Not yet registeredPartners:University of Aveiro, Centre for Environmental and Marine Studies, University of Aveiro, Department of Biology, Institut national de la santé et de la recherche médicale Life Sciences, Basic Biological and Medical Research, General GeneticsUniversity of Aveiro, Centre for Environmental and Marine Studies,University of Aveiro, Department of Biology,Institut national de la santé et de la recherche médicale
re3data: r3d100011287
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:MNHN Life Science, BiodiversityMNHN
Fulgoromorpha Lists On the Web (FLOW) is an online database that aims to provide an easy-access summary of available biological published primary data on planthoppers (Hemiptera, Fulgoromorpha), a group of major economic importance. It includes information on taxonomy, nomenclature, bibliography, distribution and various associated biological information on host-plants and parasites (including fossils).
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:UniStra Geophysics, Earth Science, Astronomy and AstrophysicsUniStra
re3data: r3d100010596
The International Service of Geomagnetic Indices (ISGI) is in charge of the elaboration and dissemination of geomagnetic indices, and of tables of remarkable magnetic events, based on the report of magnetic observatories distributed all over the planet, with the help of 6 ISGI Collaborating Institutes.
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union, Germany, United States, France Compatibility:Not yet registeredPartners:SRON, European Space Agency, ISO Data Centre, MPE, MPIN, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsSRON,European Space Agency, ISO Data Centre,MPE,MPIN,IPAC,IAS
re3data: r3d100010597
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, China (People's Republic of), United States, France, Switzerland Compatibility:Not yet registeredPartners:Deutsches Elektronen-Synchrotron DESY, IHEP, SLAC, Fermilab, IN2P3 +2 partners Natural Sciences, Particles, Nuclei and Fields, PhysicsDeutsches Elektronen-Synchrotron DESY,IHEP,SLAC,Fermilab,IN2P3,IN2P3,CERN
re3data: r3d100011077
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:Université Côte d'Azur Humanities and Social Sciences, Life Sciences, Natural SciencesUniversité Côte d'Azur
re3data: r3d100014299
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Austria Compatibility:Not yet registeredPartners:CLARIN K(nowledge)-Centres, OAW Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsCLARIN K(nowledge)-Centres,OAW
re3data: r3d100012527
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For further information contact us at helpdesk@openaire.eu - Data Repository Portugal, France Compatibility:Not yet registeredPartners:University of Aveiro, Centre for Environmental and Marine Studies, University of Aveiro, Department of Biology, Institut national de la santé et de la recherche médicale Life Sciences, Basic Biological and Medical Research, General GeneticsUniversity of Aveiro, Centre for Environmental and Marine Studies,University of Aveiro, Department of Biology,Institut national de la santé et de la recherche médicale
re3data: r3d100011287
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:MNHN Life Science, BiodiversityMNHN
Fulgoromorpha Lists On the Web (FLOW) is an online database that aims to provide an easy-access summary of available biological published primary data on planthoppers (Hemiptera, Fulgoromorpha), a group of major economic importance. It includes information on taxonomy, nomenclature, bibliography, distribution and various associated biological information on host-plants and parasites (including fossils).
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For further information contact us at helpdesk@openaire.eu - Data Repository France Compatibility:Not yet registeredPartners:UniStra Geophysics, Earth Science, Astronomy and AstrophysicsUniStra
re3data: r3d100010596
The International Service of Geomagnetic Indices (ISGI) is in charge of the elaboration and dissemination of geomagnetic indices, and of tables of remarkable magnetic events, based on the report of magnetic observatories distributed all over the planet, with the help of 6 ISGI Collaborating Institutes.
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union, Germany, United States, France Compatibility:Not yet registeredPartners:SRON, European Space Agency, ISO Data Centre, MPE, MPIN, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsSRON,European Space Agency, ISO Data Centre,MPE,MPIN,IPAC,IAS
re3data: r3d100010597
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, China (People's Republic of), United States, France, Switzerland Compatibility:Not yet registeredPartners:Deutsches Elektronen-Synchrotron DESY, IHEP, SLAC, Fermilab, IN2P3 +2 partners Natural Sciences, Particles, Nuclei and Fields, PhysicsDeutsches Elektronen-Synchrotron DESY,IHEP,SLAC,Fermilab,IN2P3,IN2P3,CERN
re3data: r3d100011077
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