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The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.

B2SHARE is a user-friendly, reliable and trustworthy way for researchers, scientific communities and citizen scientists to store and share small-scale research data from diverse contexts.

ICOS Carbon Portal offers free access to high-quality and standardised greenhouse gas data, as well as to scientific and educational products and services. The Carbon Portal is a ‘one-stop shop’ for all ICOS data products. Carbon Portal manages data security, enforcement of the ICOS data policy, with user-friendly (and machine-friendly) internet- and other computer-network based interfaces. It organises long-term archiving of ICOS data products to guarantee their safe storage, future access and easy re-use. FAIR data handling is the key for the high ICOS data quality. ICOS has created a transparent, documented and reproducible process throughout the data life cycle: from the measurements at the station via the Thematic Centres and the ICOS Carbon Portal to the user. All data distributed from the stations and going through the Central Facilities, are distributed in Carbon Portal. We are following the international developments in FAIR data management to build interoperable systems and make ICOS data free available in a transparent way. The Carbon Portal is hosted by the Lund University in Sweden and Wageningen University in the Netherlands.

GnpIS is a multispecies integrative information system dedicated to plant and fungi pests. It bridges genetic and genomic data, allowing researchers access to both genetic information (e.g. genetic maps, quantitative trait loci, association genetics, markers, polymorphisms, germplasms, phenotypes and genotypes) and genomic data (e.g. genomic sequences, physical maps, genome annotation and expression data) for species of agronomical interest. GnpIS is used by both large international projects and plant science departments at the French National Institute for Agricultural Research. It is regularly improved and released several times per year. GnpIS is accessible through a web portal and allows to browse different types of data either independently through dedicated interfaces or simultaneously using a quick search ('google like search') or advanced search (Biomart, Galaxy, Intermine) tools.

COVID-HEP Registry is a universal and collaborative registry project to collect data on patients with liver disease at any stage or liver transplants who develop laboratory-confirmed COVID-19. We are pleased to encourage reports from worldwide. However, if reporting from the Americas or China/Japan/Korea, please see our collaborators at: SECURE-cirrhosis.

The basic principle in the Biocidal Products Regulation ((EU) No 528/2012 (BPR)) is that a biocidal product must be authorised before it can be made available on the market or used in the European Economic Area (EEA) and Switzerland. The active substance is evaluated and, provided the criteria are fulfilled, is then approved in a specified product-type. The data on this page is active substance/product-type centric. The database includes active substances in the Review Programme, active substances not in the Review Programme as well as substances in Annex I of the BPR.

The EMODnet Chemistry portal provides easy access to marine chemical data, standardised harmonized validated data collections and reliable data products, highly relevant to assess ecosystem status according to the Marine Strategy Framework Directive. Data on temporal and spatial distribution of marine litter, of the concentration of nutrients, organic matter, pesticides, heavy metals, radionuclides and antifoulants in the water column, in the sediment and in biota.

STOREDB provides infrastructure for sharing data and resources in radiation biology and epidemiology. It is a platform for the archiving and sharing of primary data and outputs of all kinds, including epidemiological and experimental data, from research on the effects of radiation. It also provides a directory of bioresources and databases containing information and materials that investigators are willing to share. STORE supports the creation of a radiation research commons.