910 Data sources
- CA
- SE
- EU
- Thematic: No
- CA
- SE
- EU
- Thematic: No
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:NRCAN CFS CWFC, NRCan Life Sciences, Agriculture, Forestry, Horticulture and Veterinary Medicine, Inventory Control and Use of Forest ResourcesNRCAN CFS CWFC,NRCan
re3data: r3d100013671
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013671&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013671&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:Alberta Government Humanities and Social Sciences, Humanities, EconomicsAlberta Government
re3data: r3d100012944
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re3data: r3d100013970
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013970&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013970&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Canada Compatibility:OpenAIRE PubRepos v4.0Partners:NRCNRCOAI-PMH URL: https://oai-pmh.nrc-cnrc.gc.ca/ctrl
This site provides access to documents authored by NRC employees. Some items are not available as full text; where available, alternative locations to obtain documents may be provided. The interface is in French and English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::757f843a169cc678064d9530d12a1881&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::757f843a169cc678064d9530d12a1881&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:Royal Roads University Humanities and Social Sciences, Economics, Social and Behavioural SciencesRoyal Roads University
re3data: r3d100014095
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014095&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014095&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue, SciCat instance
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=re3data_____::211db6e7f48f3d310552765226b9154e&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=re3data_____::211db6e7f48f3d310552765226b9154e&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:PSF, Sitka Foundation, University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre Natural Sciences, Atmospheric Science and Oceanography, OceanographyPSF,Sitka Foundation,University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre
re3data: r3d100014003
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014003&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014003&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:ONC Environmental Science, Oceanography, Earth ScienceONC
re3data: r3d100011094
Ocean Networks Canada is a database on data pertaining to the ocean and marine environment.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.1e2ced&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.1e2ced&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Canada Compatibility:OpenAIRE 3.0 (OA, funding)Partners:University of Winnipeg MultidisciplinaryUniversity of WinnipegOAI-PMH URL: https://winnspace.uwinnipeg.ca/oai/request
This site is a university repository providing access to the publication output of the institution. Extensive information on the advisory and editorial boards that support this sites content and strategic development is included.
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910 Data sources
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:NRCAN CFS CWFC, NRCan Life Sciences, Agriculture, Forestry, Horticulture and Veterinary Medicine, Inventory Control and Use of Forest ResourcesNRCAN CFS CWFC,NRCan
re3data: r3d100013671
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013671&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013671&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:Alberta Government Humanities and Social Sciences, Humanities, EconomicsAlberta Government
re3data: r3d100012944
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012944&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012944&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository United States, Canada Compatibility:Not yet registeredPartners:UMM, University of Toronto, Donnelly Centre for Cellular and Biomolecular Research, Boone Lab Life Sciences, Basic Biological and Medical Research, General GeneticsUMM,University of Toronto, Donnelly Centre for Cellular and Biomolecular Research, Boone Lab
re3data: r3d100013970
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013970&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013970&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Canada Compatibility:OpenAIRE PubRepos v4.0Partners:NRCNRCOAI-PMH URL: https://oai-pmh.nrc-cnrc.gc.ca/ctrl
This site provides access to documents authored by NRC employees. Some items are not available as full text; where available, alternative locations to obtain documents may be provided. The interface is in French and English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::757f843a169cc678064d9530d12a1881&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::757f843a169cc678064d9530d12a1881&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:Royal Roads University Humanities and Social Sciences, Economics, Social and Behavioural SciencesRoyal Roads University
re3data: r3d100014095
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014095&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014095&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue, SciCat instance
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=re3data_____::211db6e7f48f3d310552765226b9154e&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=re3data_____::211db6e7f48f3d310552765226b9154e&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:PSF, Sitka Foundation, University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre Natural Sciences, Atmospheric Science and Oceanography, OceanographyPSF,Sitka Foundation,University of British Columbia, Institute for the Oceans and Fisheries, Strait of Georgia Data Centre
re3data: r3d100014003
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014003&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100014003&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Canada Compatibility:Not yet registeredPartners:ONC Environmental Science, Oceanography, Earth ScienceONC
re3data: r3d100011094
Ocean Networks Canada is a database on data pertaining to the ocean and marine environment.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.1e2ced&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.1e2ced&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Canada Compatibility:OpenAIRE 3.0 (OA, funding)Partners:University of Winnipeg MultidisciplinaryUniversity of WinnipegOAI-PMH URL: https://winnspace.uwinnipeg.ca/oai/request
This site is a university repository providing access to the publication output of the institution. Extensive information on the advisory and editorial boards that support this sites content and strategic development is included.
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