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European Spallation Source (ESS) Data Catalogue, SciCat instance

Researchdata.se is a national web portal where you can find, share, and reuse research data from a wide range of research fields. You can also find helpful advice and recommendations on managing research data. Several leading research infrastructures are behind Researchdata.se, which is an important step towards the goal of open access to publicly funded research data.

The CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.

The Canada Vigilance Adverse Reaction Online Database contains information about suspected adverse reactions (also known as side effects) to health products. Adverse reaction reports are submitted by: consumers and health professionals, who submit reports voluntarily; and manufacturers and distributors (also known as market authorization holders), who are required to submit reports according to the Food and Drugs Act. Data is stored from 1965 onwards.

The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.

QSpace is an online repository of digital content produced and collected by the Queen’s University community. QSpace provides access to peer-reviewed articles, conference papers, technical reports, graduate theses and dissertations and other works produced by Queen’s faculty and students. QSpace is managed by the Library’s Scholarly Publishing service, facilitating seamless access to Queen’s research to the widest possible audience. For more information about QSpace and to contribute your work(s) please contact the Scholarly Publishing Team.