159 Data sources
- EU
- DZ
- Not yet registered
- EU
- DZ
- Not yet registered
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:University of AlgiersUniversity of AlgiersAll Research products
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re3data: r3d100012527
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012527&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012527&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
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re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Norway, Germany, United States, European Union Compatibility:Not yet registeredPartners:University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project, Helmholtz Uncertainty Quantification project, OSF, Helmholtz Association of German Research Centres, BMBF +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsUniversity of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,Helmholtz Uncertainty Quantification project,OSF,Helmholtz Association of German Research Centres,BMBF,European Union, Horizon 2020,Project Power-grid frequency database,DFG
re3data: r3d100013364
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union Compatibility:Not yet registeredPartners:Université Claude Bernard Lyon 1, Lyon Observatory, EURO-VO Natural Sciences, Astrophysics and Astronomy, PhysicsUniversité Claude Bernard Lyon 1,Lyon Observatory,EURO-VO
re3data: r3d100012014
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012014&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012014&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, Belgium, European Union, Denmark Compatibility:Not yet registeredPartners:ASE, EC, FP7, EEA Life Sciences, Agriculture, Forestry, Horticulture and Veterinary Medicine, Ecology of Agricultural LandscapesASE,EC,FP7,EEA
re3data: r3d100011057
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re3data: r3d100013058
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159 Data sources
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Algeria Compatibility:Not yet registeredPartners:University of AlgiersUniversity of AlgiersAll Research products
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re3data: r3d100012527
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012527&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012527&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, IAG, EUREF Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,IAG,EUREF
re3data: r3d100011724
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union, Germany, United States, France Compatibility:Not yet registeredPartners:SRON, European Space Agency, ISO Data Centre, MPE, MPIN, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsSRON,European Space Agency, ISO Data Centre,MPE,MPIN,IPAC,IAS
re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Norway, Germany, United States, European Union Compatibility:Not yet registeredPartners:University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project, Helmholtz Uncertainty Quantification project, OSF, Helmholtz Association of German Research Centres, BMBF +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsUniversity of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,Helmholtz Uncertainty Quantification project,OSF,Helmholtz Association of German Research Centres,BMBF,European Union, Horizon 2020,Project Power-grid frequency database,DFG
re3data: r3d100013364
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union Compatibility:Not yet registeredPartners:Université Claude Bernard Lyon 1, Lyon Observatory, EURO-VO Natural Sciences, Astrophysics and Astronomy, PhysicsUniversité Claude Bernard Lyon 1,Lyon Observatory,EURO-VO
re3data: r3d100012014
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012014&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012014&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, Belgium, European Union, Denmark Compatibility:Not yet registeredPartners:ASE, EC, FP7, EEA Life Sciences, Agriculture, Forestry, Horticulture and Veterinary Medicine, Ecology of Agricultural LandscapesASE,EC,FP7,EEA
re3data: r3d100011057
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011057&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011057&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Greece, European Union, United Kingdom Compatibility:Not yet registeredPartners:SBOING.net, European Commission, HORIZON 2020, Coventry University, TInnGO Humanities and Social Sciences, Education Sciences, Social and Behavioural SciencesSBOING.net,European Commission, HORIZON 2020,Coventry University,TInnGO
re3data: r3d100013058
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013058&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013058&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu
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