- CN
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- Thematic: No
- CN
- EU
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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European Spallation Source (ESS) Data Catalogue, SciCat instance
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:Knowledge Management System of Institute of Deep-sea Science and Engineering,CASKnowledge Management System of Institute of Deep-sea Science and Engineering,CASAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CNGB Life Science, Virology, PhylogeneticsCNGB
China National GeneBank DataBase (CNGBdb) is an official partner of the GISAID Initiative. It provides access to EpiCoV and features the most complete collection of hCoV-19 genome sequences along with related clinical and epidemiological data. With the data from this database scientific researchers can construct a virus phylogenetic tree to reveal the characteristics of the pathogen, and provide effective references for the study and analysis of the evolutionary source and pathological mechanism of the novel coronavirus.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:OpenAIRE Basic (DRIVER OA)Partners:Chinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), ChinaChinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), China
This site provides access to the output of the institution. The interface is available in Chinese and English. Some items are not available as full-text.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, China (People's Republic of), United States, France, Switzerland Compatibility:Not yet registeredPartners:Deutsches Elektronen-Synchrotron DESY, IHEP, SLAC, Fermilab, IN2P3 +2 partners Natural Sciences, Particles, Nuclei and Fields, PhysicsDeutsches Elektronen-Synchrotron DESY,IHEP,SLAC,Fermilab,IN2P3,IN2P3,CERN
re3data: r3d100011077
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For further information contact us at helpdesk@openaire.eu - Data Repository China (People's Republic of) Compatibility:Not yet registeredPartners:Fudan University Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, HumanitiesFudan University
re3data: r3d100012775
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue, SciCat instance
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For further information contact us at helpdesk@openaire.eu - Data Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CNGB Life Science, Virology, PhylogeneticsCNGB
China National GeneBank DataBase (CNGBdb) is an official partner of the GISAID Initiative. It provides access to EpiCoV and features the most complete collection of hCoV-19 genome sequences along with related clinical and epidemiological data. With the data from this database scientific researchers can construct a virus phylogenetic tree to reveal the characteristics of the pathogen, and provide effective references for the study and analysis of the evolutionary source and pathological mechanism of the novel coronavirus.
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This site provides access to the output of the institution. The interface is available in Chinese and English. Some items are not available as full-text.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, China (People's Republic of), United States, France, Switzerland Compatibility:Not yet registeredPartners:Deutsches Elektronen-Synchrotron DESY, IHEP, SLAC, Fermilab, IN2P3 +2 partners Natural Sciences, Particles, Nuclei and Fields, PhysicsDeutsches Elektronen-Synchrotron DESY,IHEP,SLAC,Fermilab,IN2P3,IN2P3,CERN
re3data: r3d100011077
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re3data: r3d100012775
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